Virtual Conference 2022 – September

Program – 15 September 2022

PDF Flyer – Health Sirg Webinar 

New approaches to prevention for individuals with IDD

Keynote Speakers: Thessa Hilgenkamp, PhD, Dept of Physical Therapy, University of Nevada, Las Vegas.

This keynote will discuss new approaches to prevention for adults with IDD. Diet, physical activity and exercise determine the risk of cardiovascular disease and early loss of independence, yet it is challenging for everybody to make lifestyle changes. Previous research has laid the groundwork for interventions for people with IDD, but new approaches that center the individual with IDD and their context can further improve sustainability. New approaches discussed are 1) involving the whole family in a weight loss program, 2) better understanding and adapting to a unique physiology when exercising, and 3) collaborating with co-researchers with IDD in developing new interventions to promote physical activity.

Co-presenters:

1. Mary Hastert, MS, RD, LD, and Ph.D Student in Medical Nutrition Sciences at KU Medical Center
   “Parent Modeling and Changes in Adolescent Behavior Following an 18-Month Weight Loss Trial for Adolescents with Intellectual and Developmental Disabilities”
2. Victor Beck, MS, and Ph.D Student in Interdisciplinary Health Sciences at the University of Nevada, Las Vegas
   “The role of oxygen uptake, delivery and utilization in exercise capacity of individuals with Down syndrome”
3. Laura Maenhout, MS, and Phd.D student at the Department of Movement and Sports Sciences at Ghent University, Belgium
   “Using co-creation for the development of a physical activity intervention in adolescents with intellectual disabilities: lessons learned within the Move it, Move ID!-project”

Covid-19

Keynote Speaker: Prof.  Laurence Taggart, PhD.  Ulster University, Belfast, Northern Ireland (UK)

Many people with an intellectual and developmental disability (IDD) are biologically, socially, and economically/politically vulnerable to developing SARS-COV-2 (COVID-19) compared to the general population. Most governments have developed public-health policies and strategies to address the challenges that COVID-19 has presented. These policies and strategies have been based upon the general population and in fact could be detrimental to the health and well-being of people with IDD. This keynote provides a review of the key learning points emerging from the COVID-19 literature, together with guidance for the provision of services and government interventions for people with an IDD for future pandemics

Co-presenters:

1.  Maarten Cuypers, PhD. Epidemiologist and senior researcher, Radboud university medical center, Nijmegen, The Netherlands
   Impact of COVID-19 among people with intellectual disabilities in The Netherlands; infections, disease burden, and mortality
2. Ed Oloidi, PhD. Research Associate University of New South Wales
   Lifting of Restrictions of people with Profound and Multiple Learning Disabilities during COVID-19: Living a More Restricted Life? 
3. Peter Mulhal, PhD, Research Associate Ulster University, N Ireland
   COVID-19 and future pandemics: the impact of lockdown on health-related appointments

Long term conditions in people with IDD

Keynote Speaker: Dr. Henrietta Trip, PhD, University of Otago, Christchurch, New Zealand

Overview of long-term conditions in people with IDD, concepts of self-management and supported decision-making per UNCRPD. Development of the International Consensus Guideline: Reasonable Adjustments in the Management of Type 2 Diabetes in Adults with Intellectual and Developmental Disabilities.

Co-presenters:

1. Dr Maria Truesdale, PhD, University of Glasgow, Scotland, United Kingdom
   Pending trial – Clinical and Cost effectiveness of the DESMOND-ID education programme for adults with intellectual disability and type2 diabetes.
2.  Dr Genevieve Breau, PhD, University of Greenwich, London, United Kingdom.
   The role of primary care providers in chronic disease screening in people with intellectual and developmental disabilities.
3. Milou van den Bemd, MSc, PhD(Cand), Radboud University Medical Centre Nijmegen, The Netherlands
   Differences between chronically ill people with and without ID: Consequences for chronic disease prevalence and care provision.