Ethics is everyone’s business

Program – 23 February 2022

1:00 pm
Australian Eastern Standard Time
(Brisbane, Australia)

2:00pm AEDT (Melbourne, Sydney, Hobart, Canberra)
1:30pm ACDT (Adelaide)
11:00am AWST (Perth)

Topic: Decision-making capacity and consent, with a focus on people with PIMD

Host: Michelle King

The UNCRPD calls for universal legal decision-making capacity, but what does this look like for people with profound intellectual disabilities? People with PIMD challenge ideas about decision-making and how it works in practice. Some of the key ethical issues involving Article 12 and universal legal capacity are discussed by researchers and theorists in the field in this roundtable. Join the IASSIDD Ethics SIRG in the Australian time slot for research presentations and general discussion.

1:00 pm
Eastern Standard Time
(Canada)

Topic: Supporting people with IDD in public health: It’s not just about the facts

Hosts: Bill Sullivan and John Heng

Public health interventions do not always support people with IDD well. This discussion will explore the impact that different ethical frameworks have had on people with IDD and their families and other caregivers globally. We will also discuss how, together, we could be better prepared ethically for this and future pandemics.

1:00 pm
Greenwich Mean Time
(Europe)

Topic: Involving people with ID in research Europe

Hosts: Ruth Northway and Petra Björne

Linus Broström will start the session introducing the CRPD and inclusive research Fionn Angus and Ruth Northway will comment. We will then meet in breakout rooms according to interests. Participants are invited to present ongoing research, seek advice on how to involve people with IDD in research projects, or share ideas on inclusive research. We kindly ask you to state you field of interest in an e-mail to ethics.iassidd@gmail.com:

• Parenting
• Restrictive practices
• Supporting inclusion in non-ID specialist research
• Health
• Other