Keynote Speakers: Dr Thomas Jun
Their keynote lecture is entitled: Conducting AI Research with and for People with Intellectual Disabilities and Multiple Long-Term Conditions
Abstract: DECODE (https://decode-project.org/) is a National Institute for Health and Care Research (NIHR)-funded project (2022–2025) focused on applying artificial intelligence to identify patterns of multiple long-term conditions (MLTCs) in people with intellectual disabilities. The project aims to translate these complex data patterns into actionable insights for improving care and outcomes.
Led by a multidisciplinary team—including clinicians, epidemiologists, AI and data science experts, system scientists, human factors specialists, information designers, health informaticians, and ethicists—DECODE exemplifies collaborative, interdisciplinary research. A key strength of the project has been its inclusive and highly commended Patient and Public Involvement and Engagement (PPIE) work, led by a learning disability nurse and a speech and language therapist. Their leadership has ensured that the voices and experiences of adults with intellectual disabilities meaningfully shaped the research.
This keynote will share key findings from DECODE and, more importantly, reflect on how the project embedded inclusive approaches to PPIE throughout its lifecycle—offering lessons for future research and practice in complex health and care systems particularly for people with intellectual disabilities.
Biographical Information:
Dr Thomas Jun is a Professor of Sociotechnical System Design at the School of Design and Creative Arts, Loughborough University and a Chartered Ergonomist and Human Factors Specialist.